Meaningful engagement of patients, survivors and carers in addressing antimicrobial resistance

Overview

Involving patients and the public in antimicrobial resistance (AMR) is vital for a robust, holistic response. Patients, survivors and carers provide first-hand perspectives on antimicrobial use and its impact on their lives, which can be used in developing people- and patient centered solutions. Engagement of survivors can raise awareness and motivate changes in the behaviour of the wider public. The current AMR narrative is considered highly technical and sometimes difficult for the public, for health-care workers who are not specialists in infectious diseases and for policy-makers. Patients’ experiences can improve the narrative by “humanizing” it. Additionally, inclusion of diverse patient perspectives ensures that interventions include cultural, socioeconomic and demographic factors, thus promoting equitable, effective outcomes

This document was prepared by the WHO Taskforce of AMR Survivors, which was established in 2023 to give a platform for and elevate the voices of those with experience of complications from drug resistant infections. The document is designed to guide technical experts and policy-makers in identifying opportunities for meaningful engagement of survivors and people with lived experience of AMR to advance international, national and local AMR agendas.